Tuesday, October 15, 2013

Five themes from presentations and discussions


As I (Susan) sifted through the program and my notes, I came up with five themes that functioned like a repeating musical line.  If you’re been reading some or all of these blog posts you’ve probably noted these, for we’ve referred to them several times.  Others attending the same conference may have different ideas on repeating motifs, but here are mine.

1.  Persons living with dementia must be involved in all phases of planning, implementation, and evaluation of programs and services.  Well-meaning academics and professionals should never act as if by virtue of their education and training, they know what people living with dementia want and need. 

2.  Persons living with dementia around the world repeatedly tell researchers, policy makers, and program professionals that they want more opportunities for stigma free social interaction.

3.  When communities are intentional about improving dementia attitudes, services, and programs, persons with the diagnosis can maintain a good quality of life.  This is not to say there won’t be suffering, but taking the approach that we’re all in this together will go a long way to ameliorating some of the suffering, especially when it’s caused by social isolation. 

4.  Creation of dementia friendly communities and societies will take collective will at national, regional, and local levels.  It’s not an either/or.  Some policies and programs need the weight of national governments behind them; others will begin in neighborhoods.  International cooperation and open exchange of ideas is crucial as well. 

5.  We must begin to address the complexities at the intersection of the desire for dignity and the desire for autonomy.  All of us are vulnerable creatures needing care from others that promotes dignity.  People with dementia experience an extra load of vulnerability that changes with the progression of the condition.  We need to look carefully at how we balance the wants, needs, and declarations (as in advance directives) of the “then self” and the “now self.”  This will not be easy and will require persons with dementia to collaborate with philosophers, theologians, artists, social scientists, medical professionals and others. 

This last point leads me to look ahead to the Alzheimer Europe meeting in Glasgow, Scotland, in October, 2014 where the theme will be “Dignity and Autonomy.”  Whether you’re struggling with the question of your father’s driving (e.g., taking away his dignity along with his driver’s license, or allowing him autonomy to make decisions about his driving capability) or you’re wrestling with life and death questions about treating pneumonia with antibiotics (e.g., knowing your wife signed a living will years ago and stated she never wanted to “be put in a nursing home,” but nevertheless she’s been happy living in a high quality memory care residence), you are living at the cusp of two major—and sometimes competing—challenges of life the 21st century.  Thankfully, the good people who organize the Alzheimer Europe meetings are providing a forum for these difficult discussions.

8 comments:

  1. This comment has been removed by a blog administrator.

    ReplyDelete
  2. Dr Itua cure my HIV, I have been a ARV Consumption for 10 years. i have been in pains until i came across Dr Itua on blogs site.I emailed him about my details of my HIV and my location i explained every thing to him and he told me that there is nothing to be scared of that he will cured me, he gave me guarantee,He ask me to pay for items fees so when i'm cured I will show gratitude I did and giving testimony of his healing herbs is what I'm going to do for the rest of you out there having HIV and other disease can see the good work of Dr Itua.I received his herbal medicine through EMS Courier service who delivered to my post office within 5 working days.Dr Itua is an honest man and I appreciate him for his good work.My GrandMa called him to appreciate him and rest of my friends did too,Is a joy to me that I'm free of taking Pills and having that fat belle is a nightmare.you will understand what i'm talking about if you have same problem I was having then not now though.I'm free and healthy Big Thanks To Dr Itua Herbal Center.I have his calendar too that he recently sent me,He Cure all kind disease Like,Cancer,Herpes,Hiv,Hepatitis B,Fibroid,Diabetes,Dercum,Copd ,and also Bring back Ex Lover Back..Here his Contact .drituaherbalcenter@gmail.com Or Whats_app Number +2348149277967

    ReplyDelete
    Replies
    1. Having herpes is not the end of life there many treatment to cure herpes infection with the help of Dr Edidia herbal product.
      I was positive to the deadly virus called HERPES and i lost hope because i
      was out casted and rejected even by my closet friends.
      i searched on-line to know and enquirer about cure for HERPES and i read
      someone testimony on how he was cured from HSV-2 so i decided to contact
      the same herbalist Call Dr Edidia because i know that nature has the power
      to heal everything.
      i contacted him to know how he can help me and he told me never to worry
      that he will help me with the natural herbs from God!
      after 2 days of contacting him, he told me that the cure has been ready and
      he sent it to me via UPS SPEED POST and it got to me after 3 days!
      i used the medicine as he instructed me (MORNING and EVENING) and i was
      cured!
      its really like a dream but i am so happy!
      thats the reason i decided to also add more comment of Him so that more can
      be saved just like me!
      and if you need his help, you can email him on dredidiaherbalhome@gmail.com
      or whatsapp +2349074505296
      here is the Dr website http://dredidiaherbalhome.weebly.com/

      I,m rosesharon and you can get intouch with me via rosesharon915@gmail.com also view website to know him



      Delete
  3. Unfortunately there are a lot of AIDS/Herpes denials on Herbal cures still out there. I did research on them after I was tested HIV/Herpes positive I was so worried am I going to die soon. I continue my search again on herbal remedy for Std, then I found lots of testimony on how Dr Itua Herbal Medicine Cured HIV/Aids, Herpes Virus,Copd, Hepatitis, Diabetes, On websites sharing their testimonies, which made much more sense to me. All the authors pronounce Dr Itua As a man with Good Heart, I pick interest in their testimonies and I contact him about my situation then he gave me procedure how it works, I proceed after one week he courier his Herbal Medicine to me and instruct me on how to drink it for two weeks to cure. I receive His Herbal Medicine so I drank it for two weeks as I was told then after 2 days I go for a test I found out I was cured from HIV/Aids & Herpes Virus, I pay homage to him 2 months ago to his country to celebrate with him on his African festival which he told me it usually happens every year. I know there are lots of (HIV)/Aids&Herpes Virus denials of Herbal Remedy movement the same few doctors and they represent a very small faction of the community. I could have died because I refused Natural Herbs Cures for so long, but luckily, by the grace of God I am alive to tell my story. Contact Info...Whatsapp Number...+2348149277967,Email...drituaherbalcenter@gmail.com/My Instagram Username...avat5634 Just in case you need someone to talk with.

    ReplyDelete
  4. I am so glad to write this article today to tell the world how Chief Dr
    Lucky cured my HPV virus that have been in my body since five years ago,
    ever since then my life has been in complete,i have used so many drugs that
    was prescribed to me by several doctors,but it didn't cure my HPV VIRUS
    neither did it reduce the pain, i was checking for solution on the internet
    then miraculously came across Chief Dr Lucky the powerful herbalist that
    cure HPV INFECTION,then i contacted his email, i explained everything to
    him and he prepared a herbal cure and send it to me that was how i got
    cured from HPV disease totally after receiving his herbal medicine, so my
    friends viewers why waiting and be suffering with this HPV virus when there
    is someone like Chief Dr Lucky that can cure any disease HIV/ CANCER/
    HEPATITIS C VIRUS,HERPES VIRUS,ALS VIRUS.
    you can contact his via email:
    chiefdrlucky@gmail.com
    Whats App or call
    +2348132777335
    Website : http://chiefdrluckysolutionhome.website2.me/

    ReplyDelete
  5. I am John Danilla from UK( northern ireland), i want to share a
    testimony on how a powerful spell caster cured my HIV disease, i was
    diagnosed of this disease, in the year 2009, last week i saw a testimony on
    Dr.Akioya on how he cured an HIV patient, so i contacted him through phone
    call and he asked me to email him, which idid, so he told me that all my
    problems is over and then he decided to do an healing spell spell for me so
    after he finished it, he told me to wait for just 24 hours and then i
    should go for a test, so i really did as he had said, so my greatest
    surprised when i went to the hospital to go for an HIV test, the Medical
    doctor diagnosed that, i am now HIV negetative at first i was amazed and
    now i have come to realise that this spell caster Dr. Akioya is a very
    powerful one and a real spell caster. So viewers of this should please join
    me in my celebration for i am the happiest man on earth today and if you
    want to contact him, you can do this via his email
    (drakioya17spellhome@gmail.com or call him or whatsapp him
    +2348105257464.

    ReplyDelete